文档介绍：Consent and Confidentiality:
Exploring Ethical Issues in Public Health work Research
Jenine K. Harris
Department munity Health, Saint Louis University
St. Louis, Missouri
Abstract
Current ethical regulations were necessarily developed in response to unethical treatment of
human subjects by clinical and social researchers in settings ranging from Nazi concentration
camps in the 1940s to . government offices in the 1960s. Due to a focus on relationships,
work studies plex ethical dilemmas regarding consent and confidentiality that
often challenge these ethical regulations. These issues have kept work projects from
receiving Institutional Review Board (IRB) approval, and, in the case of Virginia
Commonwealth University, halted human subjects research university-wide. In public health,
work analysis is an effective method for understanding how diseases are transmitted,
how health messages are spread, how social support impacts morbidity and mortality, and how
public anizations collaborate. A review of 50 public health articles using social
network approaches showed that few authors discussed issues of consent and confidentiality.
Without accessible examples of how others have addressed consent and confidentiality, these
issues will continue to challenge public health work researchers and their IRBs.
Keywords: work analysis, public health, ethics, consent, confidentiality
Jenine Harris is an Assistant Professor munity Health in biostatistics at the Saint Louis University School
of Public Health. She is also Assistant Director of Research for the Center for o Policy Research at
Washington University's e Warren Brown School of Social Work. Her research interests include the use of
work analysis to evaluate public health programs and systems approaches to o control.
For correspondence, please contact Jenine K. Harris, . at the Department munity Healt